Trichotillomania - Working with Lucinda
Transcription of Conversation - Trichotillomania - Working with Lucinda
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For a start what I was impressed with was that from the very first day I saw you personally, whereas with an awful lot of organisations there's a name, but there's also a whole host of people who actually do the day to day stuff, so for you personally to be so directly involved in what we do I think is important and I think it means a lot, because I think it would be easy for you to hide away in an office somewhere and leave your crew to do everything, but you don't, you're there on the coalface. I also think a lot of organisations are quick to take the money, quick to give you the treatment and wave you out the door, but this goes far beyond that, it's far deeper, far more involved; I don't know many people that would give their own phone number and tell you to phone them on a Sunday for example, and just let you know how they're getting on. And I think there's just an awful lot of bells and whistles that you guys probably don't even think you do anymore, it just happens automatically; they mean so much to us. More than just coming, getting your hair done and going home. There's a deeper thing to it than that. For me. And I think it's probably that side of it, more than just the mechanics of having my hair done, that has probably enabled me to sit here today with my own hair feeling great, and that's something you can't really put a price on.
It took me a long time to get the courage to come and see you, like I think most women who finally get it together to come and talk to someone about something so deep and so personal and troubling. It takes a few years and then you worry about the reception that you're going to get, and from the very first moment I met you Lucinda you just knew exactly what was going on, and you empathised so beautifully and you didn't make me feel ashamed, it wasn't even a big deal, I remember you lifted my hair and you said 'you've got so much hair' - the first time anybody's ever said that to me and I said 'What!' And you just made me feel so confident,and so, as if everything was going to be alright and I was going to be helped and what Margaret's just said, that you don't hide behind a company facade, you're not like some super-chef possibly with some series of kitchens but you never see them. You know every single face that comes through your door.
My first experience of Trichotillomania I found through America - I actually went to America to see the TLC in America, I went there for a four day conference and that's where I found out about it, and it was very emotional and I cried the four days while I was there because I thought I was the only one who had Trichotillomania, and then I saw all these people there, and I met Christina there and everybody and then when I came back that gave me the courage to phone up and come and see you. And once I came and saw you I thought that was it, there's no turning back. For me you gave me the courage, the strength to say 'yes I'm going to go ahead and do this now, this is the only thing that's going to help me', and the last six or seven years I would say that that I've been coming here - having trichotillomania - that's been the best thing in my life the last six or seven years of having it has been coming here, having my Volumiser, the Intralace system put in, giving me confidence to carry on with my life and do things, and it's all down to you because you give people strength, you give people confidence, you give people...
It's like the key to a door really, that opens that door up
Dignity, we haven't had that dignity before.
You don't make people feel small like some people do, you make them feel six foot tall and give them the confidence and strength to stand straight and to think I can do this now because I've got the confidence and the help to go and do these things.
Wow, I have to say about the girls I've met here, the girls I know, I'm always in awe of them, because I think 'Oh my god, they go through their lives, they get their careers off the ground, they bring up their children, and they go on and upwards and they do these amazing things and all the time they've got to deal with this. Which would actually put most people on their knees.' You know when I meet other women that never had this kind of challenge, and they've done well, they've got married, got carriers, but it's nothing compared to what the women I meet every day, do every day, with such grace. With such humilty, so obviously working with the wonen I do with TTM, I've always found it quite extraordinary.